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Damn, that sort of thing is never easy to hear, even moreso with the scare you guys already had. Let's hope it's nothing serious.

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He's responded positively so far and this kind of thing is better caught early so try and hold onto that. 

That being said, I know you absolutely will be worrying until you get the results from the scan but we are all hoping the best for you. 

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Unfortunately, the doctor is correct. He did reassure us that this surgery will be a lot less complicated than last time. They're keeping him in hospital until then, not because he needs the medical attention, but because he will get seen to sooner.

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It's difficult and scary but just try to hold on to the fact they caught it early and experience has shown the doctors do care and are clearly fighting hard for your son's health. 

I hope the surgery is scheduled soon for your own peace of mind

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Still waiting for surgery. They've had a lot of emergencies so his operation has been cancelled 4 times so far, it's just not safe to proceed without the equipment and staff available.

Ollie is still fine at the moment. The doctors don't actually know why, with a coronary issue like this, he should be really ill, one of the staff members has encountered this situation once before (they've all been working for 20-25 years). Luckily, the procedures they plan on doing are things they have done. They have three things they can do, but they don't know which method they will used until they actually see his heart for themselves. 

 

Hopefully things calm down in the ICU so we can get seen.

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14 minutes ago, Cube said:

Ollie is still fine at the moment. The doctors don't actually know why, with a coronary issue like this, he should be really ill

From here, this sounds positive, at least. The baby isn't suffering, and can have a healthy life until the surgery.

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He had his surgery today, it went well, now he's in ICU to start his recovery. The machine they were waiting for wasn't needed in the end, which is very good.

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Glad to hear. Hope you and your wife are able to rest a bit more peacefully tonight now that he's out of surgery. 

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So it's been a long road, getting form there to here. The stint in ICU was agonisingly long for us, he had a failed excavation (he couldn't handle breathing after his ventilator was removed), but then was moved from the ventilator to the next step down in breathing support. 

He had a scan done, and the person who did a scan was "oh no" and seemed to think another surgery was needed soon. The doctors spoke to us next day and said it was as expected (he has a leaky valve due to his compressed coronary, the hope is that it will now heal over time).

Last weekend he was moved from ICU to the next step down  (called HDU), one of the doctors wanted to go very slow on weaning off the breathing support and said (not directly to us, to other doctors) that he'd probably be in the next step for weeks.

A few days later, they took him off breathing support for pressure relief, he did so well that he never went back on. We're looking at potentially going home soon because he's doing so well now.

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