tapedeck

bad stuff thread.

Recommended Posts

On 12/05/2021 at 9:17 PM, MoogleViper said:

Had an issue with my left eye for a week and a half now. Been taking antibiotic eye drops for a week but no improvement. Paid for a test at Specsavers who referred me to a specialist. Was waiting 2.5 hours at the hospital, finally get to the appointment, she looks into my eye for 30 seconds and tells me to shampoo my eyeballs twice a day. The fuck?!

She also gives me an ointment that I need to put inside of my eyelids.

are you sure you didnt go to the hairdresser by mistake :heh:

--

 

I went to what i assumed was a routine appt with nurse specialist today.  she is *not* happy.  she noted considerable decline in speech and mobility. my medications are being withdrawn until i see a neurology consultant. 

So not only do i have considerable muscle fatigue (which i personally dont think will resolve withdrawing meds) but the remission of my psoriasis and arthritis is now pretty much over.  I've sat all day with a knot of anxiety in my chest, and its not like me to be a really anxious person.  oh yeah and not forgetting the fact i can go into a spontaneous respiratory crisis at any moment. Its a fun time. :grin:

I got told off for not complaining "you're the kind of patient we worry about the most because you just dont complain at all"

Prob a few of you peeps here will understand me (@nightwolf special shoutout lol) that when you're chronically ill you just get so damn used to living with whatever it is. The normies, especially medical people, expect you to be miserable 24/7 but the fact is yes i have shit days, but a lot of the time i just want to enjoy my day despite everything going on.

 

  • Like 2

Share this post


Link to post
Share on other sites

Yup! My recent appointment with a private consultant showed that my pain tolerance is through the roof. So when I told my NHS doctor my pain levels instead of him using that AND all my records and scans he just went "well you deal just fine."

My private consultant was like...wtf. So that's fun! Compared to here it's remarkably rare that I complain about the pain I'm in outside of my own home. Most of the time my partner only knows because I'll pull a face or make some kind of accidental noise. It sucks. 

Share this post


Link to post
Share on other sites
11 hours ago, nightwolf said:

Yup! My recent appointment with a private consultant showed that my pain tolerance is through the roof. So when I told my NHS doctor my pain levels instead of him using that AND all my records and scans he just went "well you deal just fine."

My private consultant was like...wtf. So that's fun! Compared to here it's remarkably rare that I complain about the pain I'm in outside of my own home. Most of the time my partner only knows because I'll pull a face or make some kind of accidental noise. It sucks. 

I knew you would completely understand and thats just fuckin sad :(  like, what other choice do we have lol.  You deal with it or you throw yourself off a bridge, thats about the only fuckin options you got.  Kickin off a stink gets you known as a hypochondriac and dismissed even more, especially when you're under the age of 40.  The next person that says "you're too young" might get my "young" fist in their mouth lol. 

The fact you have a supportive and understanding partner is wonderful though :heart:

  • Like 1

Share this post


Link to post
Share on other sites

I try and get a new bike to reinvorigate the gains and treat myself, but it appears to not want to bestow its glory upon me. Had some chain issues so took it back to Halfords who said one part of the gears wasn't assembled properly, but even on the way home the chain popped off again and has several times since (with several similarly veined reviews). This cannot be just from me pedalling too hard, as the resistance is shocking on even its highest gear - my old bike just wouldn't turn if you tried pedalling on a higher gear with no speed and zero chance of coming off, it was that good. 

Hopefully get it changed for something else, because this isn't a safe bike

Share this post


Link to post
Share on other sites
On 18/05/2021 at 8:03 PM, Raining_again said:

are you sure you didnt go to the hairdresser by mistake :heh:

It would probably make more sense.

I went back for a follow up. He said the corneal ulcer had cleared up, but it had left some scarring on my eyeball. So now I'm using moisturising drops to help the scarring heal

Share this post


Link to post
Share on other sites
On 29/05/2021 at 2:41 PM, MoogleViper said:

It would probably make more sense.

I went back for a follow up. He said the corneal ulcer had cleared up, but it had left some scarring on my eyeball. So now I'm using moisturising drops to help the scarring heal

ooohhh yikes.... :cry:

i can cope with almost anything medical but i hate eye things.  Eye ulcers are awful, i hope you feel better soon :heart:

  • Like 1

Share this post


Link to post
Share on other sites
On 19/05/2021 at 8:50 AM, Raining_again said:

I knew you would completely understand and thats just fuckin sad :(  like, what other choice do we have lol.  You deal with it or you throw yourself off a bridge, thats about the only fuckin options you got.  Kickin off a stink gets you known as a hypochondriac and dismissed even more, especially when you're under the age of 40.  The next person that says "you're too young" might get my "young" fist in their mouth lol. 

The fact you have a supportive and understanding partner is wonderful though :heart:

Honestly at this point R_A I might have to start being a bit of a dick about the NHS, I can't be nice about it anymore. I want to burn it to the fucking ground. 

I have been in the "system" since last year, about March, technically its January, but that was the GP then over to the hospital, I now have a specialist in endo as my consultant. Mid-last year we had a face to face, the TL;DR, surgery A or surgery B is the way to go. Other options will only be temporary. So pick a surgery. 

So MRIs later and delays due to covid, I went to a private doctor who worked at the same hospital in the same area as my specialist consultant. He mentioned the same thing as my NHS consultant and said we need to get you a priority. During that time I decided to pick a surgery, I chose option B. It seemed the safest and future proofing I could achieve with my own body. The more surgeries of this kind I have, the more risk it entails. 

Fast forward a little bit I had a phone call a couple of weeks ago, this was supposed to be with my NHS consultant, but for some reason it was with an entirely different doctor. Whatever. He asks me about my pain levels and whether I had given my consultants comments/advice any thought. I told him I had chosen surgery B after speaking to both him and my private doctor. 

The doctor seemed iffy, but did give me next steps, that next they'd have a big meeting and decide if that actually was the right thing and if everyone was happy to do it. This happened last time back in '17 so I wasn't surprised. I want them to be sure this is the accepted route! So at this stage I was happy that we were maybe finally getting somewhere. We'd wait for the meeting and then in his words "get you in to sign consent forms". 

However, today I received two letters (exactly the same so good job admin) for some reason this doctor on the phone was now suggesting that monthly injections and tablets for 6 MONTHS is a good idea, instead of surgery. However, they did concede they "still needed to have a chat about a surgical option with the wider team". 

You fucking what? So you're telling me that in MARCH OF FUCKING 2020 you could have given me this and made my life easier whilst we waited? But you've waited over a year, with another 6 months potentially in my future before we'll even look at booking a surgical date? WITH NO PAIN RELIEF WHATSOEVER. (This is a running theme by the by, I've never ever been offered more than paracetamol since I was diagnosed in 2016, except the morphine for a good 24 hrs after surgery - sigh). 

I am normally very very nice to every medical professional I meet, to the point of annoying my husband. But N-E you better pray for the next Dr or consultant who speaks to me because I'm about to tear then a new one. I am not waiting until sometime in fucking 2022 for a surgery and treatment that should have happened in 2020. 

  • Like 1

Share this post


Link to post
Share on other sites
10 minutes ago, nightwolf said:

Honestly at this point R_A I might have to start being a bit of a dick about the NHS, I can't be nice about it anymore. I want to burn it to the fucking ground. 

I have been in the "system" since last year, about March, technically its January, but that was the GP then over to the hospital, I now have a specialist in endo as my consultant. Mid-last year we had a face to face, the TL;DR, surgery A or surgery B is the way to go. Other options will only be temporary. So pick a surgery. 

So MRIs later and delays due to covid, I went to a private doctor who worked at the same hospital in the same area as my specialist consultant. He mentioned the same thing as my NHS consultant and said we need to get you a priority. During that time I decided to pick a surgery, I chose option B. It seemed the safest and future proofing I could achieve with my own body. The more surgeries of this kind I have, the more risk it entails. 

Fast forward a little bit I had a phone call a couple of weeks ago, this was supposed to be with my NHS consultant, but for some reason it was with an entirely different doctor. Whatever. He asks me about my pain levels and whether I had given my consultants comments/advice any thought. I told him I had chosen surgery B after speaking to both him and my private doctor. 

The doctor seemed iffy, but did give me next steps, that next they'd have a big meeting and decide if that actually was the right thing and if everyone was happy to do it. This happened last time back in '17 so I wasn't surprised. I want them to be sure this is the accepted route! So at this stage I was happy that we were maybe finally getting somewhere. We'd wait for the meeting and then in his words "get you in to sign consent forms". 

However, today I received two letters (exactly the same so good job admin) for some reason this doctor on the phone was now suggesting that monthly injections and tablets for 6 MONTHS is a good idea, instead of surgery. However, they did concede they "still needed to have a chat about a surgical option with the wider team". 

You fucking what? So you're telling me that in MARCH OF FUCKING 2020 you could have given me this and made my life easier whilst we waited? But you've waited over a year, with another 6 months potentially in my future before we'll even look at booking a surgical date? WITH NO PAIN RELIEF WHATSOEVER. (This is a running theme by the by, I've never ever been offered more than paracetamol since I was diagnosed in 2016, except the morphine for a good 24 hrs after surgery - sigh). 

I am normally very very nice to every medical professional I meet, to the point of annoying my husband. But N-E you better pray for the next Dr or consultant who speaks to me because I'm about to tear then a new one. I am not waiting until sometime in fucking 2022 for a surgery and treatment that should have happened in 2020. 

that is a lot.

My heart goes out to you, and i understand.  I am just the same.  It is very very frustrating when the goalposts are moved.  And while covid is not the NHS' fault, it certainly has made what was already fairly lacking communication even worse.  The fact that you had been led to believe xyz was happening then they backtrack you to abc is unbelievable honestly.

I got fucked about recently with ENT private v nhs as well.  been in the system most of my life with so many things they have ignored. This current issue is nearly 3 years in the making, and I'm pretty sure i may have even been misdiagnosed from as early as my early teens (now almost 35).  I am also in a position where im in a significant amount of pain, but i actually can't take painkillers because everything tries to end my respiratory function... which is kinda vital? lol  and you know its like, eating paracetamol like they're smarties for what ? next to no relief and probably liver failure in your 60s? cheers lads.

Advocate for yourself love, for real. be a big mf bitch if you need to. 1000% behind you on that.  Sometimes you have to put them under pressure. Tell them you wont leave until you at least are given a pain management plan. Tell them how much its affecting every single waking moment of your life.  Because it QUITE CLEARLY is.

P.S, :heart:

  • Like 1

Share this post


Link to post
Share on other sites

Gonna go full-German here:

It's too hot.

  • Like 1

Share this post


Link to post
Share on other sites

Accidentally sucked my earphones up the vacuum cleaner...7b1f4391311aad86b1bbdf96c6f07ab4.jpg

Share this post


Link to post
Share on other sites
25 minutes ago, bob said:

Accidentally sucked my earphones up the vacuum cleaner...7b1f4391311aad86b1bbdf96c6f07ab4.jpg

I’m guessing it wasn’t a cordless Dyson as those things pick up absolutely jack shit. 
Sorry to hear, Bob. :( 

Share this post


Link to post
Share on other sites

Well I’m about ready to move to Iceland. Anyone else up for it?

🥵🥵🥵🥵🥵🥵🥵🥵🥵🥵🥵

  • Like 2
  • Haha 1

Share this post


Link to post
Share on other sites

Meh I always just think 'enjoy it while you can'. Although with climate change that'll be more frequent. 

Share this post


Link to post
Share on other sites

I don’t enjoy anything about this heat at all. It leaves me absolutely miserable and wishing time away.

Share this post


Link to post
Share on other sites

Apparently when I was a baby I used to cry when it was too hot but I've gotten better!

I'm just sick of bloody rain as it such an inconvenience. Now all I need to worry about is making sure I don't nip slip in shops.

Share this post


Link to post
Share on other sites
Apparently when I was a baby I used to cry when it was too hot but I've gotten better!
I'm just sick of bloody rain as it such an inconvenience. Now all I need to worry about is making sure I don't nip slip in shops.
That's what titty tape is for.

Share this post


Link to post
Share on other sites
12 minutes ago, bob said:
22 minutes ago, Ashley said:
Apparently when I was a baby I used to cry when it was too hot but I've gotten better!
I'm just sick of bloody rain as it such an inconvenience. Now all I need to worry about is making sure I don't nip slip in shops.

That's what titty tape is for.

Have you ever tried to actually wear titty tape if you have hair?

A friend recommended putting tin foil (shiny side out) up in the window so I've just tried that with my bedroom to keep that cool. Will see if it works.

Share this post


Link to post
Share on other sites

As with every year I whip out the air con machine when it gets hot like this, making it all perfectly fine. Even though it only gets used 1 or 2 weeks a year I've had it for about 10 years now so it's really paid for itself. Anything to not be boiling hot!

Share this post


Link to post
Share on other sites

I have one of those face coverings that's basically a cloth tube. I've soaked it in water and am now wearing it like a hat. I look ridiculous, but my head is legitimately a bit cold. I strongly recommend it.

Basically like this, except mine isn't as long, so it's not on my back or neck:

bandana-snood-face-mask-neck-gaiter-rave

Would probably work with other hats, but the cloth of the face covering is pretty thin, so it probably works a better, but needs resoaking more often.

  • Like 1

Share this post


Link to post
Share on other sites

My office at work reached 36.5 degrees C today.

Share this post


Link to post
Share on other sites

Fkin rotten

My skin hurts and runs extremely hot when its active and inflammed.

Broken skin and a broken immune system - the two things that need to WORK to make your body regulate its temperature.  I had a cold shower at 5pm, and i was hot again within 10 minutes.

Ireland NEVER should be 30c ffs lol

:blank::cry::confused:

Share this post


Link to post
Share on other sites

Good grief I hope everyone has cooled down again now. This rain has been a blessing.

Anyway see house buying for why I'm stressed to all hell right now. 

Share this post


Link to post
Share on other sites

I had the fright of my life this morning to the point my anxiety levels just reached a stupid height.

This morning, opened a new box of Cheerios, my absolute favourite thing, to find an ACTUAL LIVE SPIDER in the box! It was proper thick as well!

For the record, I'm bloody scared of spiders! I don't give a fuck but it was horrible!

  • Like 1

Share this post


Link to post
Share on other sites
39 minutes ago, Beast said:

I had the fright of my life this morning to the point my anxiety levels just reached a stupid height.

This morning, opened a new box of Cheerios, my absolute favourite thing, to find an ACTUAL LIVE SPIDER in the box! It was proper thick as well!

For the record, I'm bloody scared of spiders! I don't give a fuck but it was horrible!

Well, I can remember when it wasn't unusual to find a free gift in a box of Cheerios... maybe this is the 2021 equivelant? :p

But yeah, not so funny when you're just about to go for a bowl of cereal.

'Ah, time for some Cheeri- oh HELL NO!'

I bet the spider was grateful though, I'm surprised it survived in that box for so long, must have got in there at the factory, so it could have been in there for, four to eight weeks maybe?

I'll remember this, the next time I open a box of cereal.

 

  • Like 1

Share this post


Link to post
Share on other sites
8 hours ago, S.C.G said:

Well, I can remember when it wasn't unusual to find a free gift in a box of Cheerios... maybe this is the 2021 equivelant? :p

But yeah, not so funny when you're just about to go for a bowl of cereal.

'Ah, time for some Cheeri- oh HELL NO!'

I bet the spider was grateful though, I'm surprised it survived in that box for so long, must have got in there at the factory, so it could have been in there for, four to eight weeks maybe?

I'll remember this, the next time I open a box of cereal.

It was just horrible. I was a bit pissed off as well because that was £3! I double-bagged the box and put it in the bin. Ain't no way I was keeping that inside the house when there could be more. Nope! Hell to the no! 

I love that 😂 😂 😂 but whatever happened to toys in cereals or spoons or something. Cereals are so boring now! 

I'm having store-brand cereal for a little bit. It took me about an hour to talk myself into it, telling myself that would never happen again 😂 

  • Thanks 1

Share this post


Link to post
Share on other sites